I saw this title in my newsfeed this morning and clicked on it with some trepidation but despite its lurid beginning it has some good information. I especially like how it contrasts the two women’s differences in pain perception, one woman describes not even taking any of the prescribed pain meds but just having a sensation of tightness post-mastectomy while another describes the pain as almost unbearable. I had the same experience as the first, aside from the horrid hangover from the anesthesia I had no pain at all and I wonder if the pain others speak of is sometimes from the placement of tissue expanders or implants under the muscle when they opt for reconstruction rather than from the mastectomy itself or if this is just an example of human variability. One of the women quoted also mentions the drains, (see second pic) those were the worst! Not actually having to deal with them but more like worrying about them every time I turned or moved for the ten days they were in place. Anyway, here’s Ann Marie’s article:
What It’s Like To Get A Mastectomy
After being diagnosed with breast cancer at age 40, Ann Marie Otis, now 44, had, as she says somewhat jarringly, her breasts “amputated.”It’s not a term most of us would choose to describe a double mastectomy, but she’s not wrong. After all, an amputation is the surgical removal of an extremity; a mastectomy is the surgical removal of a breast. Thinking of the two procedures as one in the same could drastically change our perception of breast cancer treatment. “A mastectomy is a big life change,” says Otis, who has documented much of her own healing—both physical and emotional—click to read more
I was on the front page of Today.com. Well, the tattoo was anyway… I’ve been interviewed for various magazines that are running the mastectomy tattoo angle this year but this is the first article that has a picture besides Tina’s old file copy. Tina and I got together and did a real photo shoot. So this one actually has my face! I am not ashamed to say it took me awhile to get with this… The last time I did any modeling was for the MSNBC documentary in ’94, ya, back before I was 50.
Anyway, writer Diane Mapes did a great job with the article, most of the comments on the story have been positive and I have gotten some beautiful emails from women. I’ve been recognized several times out and around Seattle and people have been really complimentary.
Facebook Allows Mastectomy Photos: Tattooed Model In Controversial Picture Speaks Out
Now lest I sound ironic, people really need access to a community site for pictures like this. When I was considering the surgery, I would have loved to have been able to see pictures like you all can now.
I just honestly can’t say I ever considered I’d be the “poster girl” for prophylactic mastectomy, or nudity in the media, or tattoos in the workplace, or whatever direction this is taking this week, it is interesting. Interesting and a little scary. Anyway…
Yes. We agree that undergoing a mastectomy is a life-changing experience and that sharing photos can help raise awareness about breast cancer and support the men and women facing a diagnosis, undergoing treatment, or living with the scars of cancer. The vast majority of these kinds of photos are compliant with our policies. They go on to explain why breastfeeding photos are removed from Facebook: However, photos with fully exposed breasts, particularly if they’re unaffected by surgery, do violate Facebook’s Terms. These policies are based on the same standards which apply to television and print media, and that govern sites with a significant number of young people. I don’t take credit here because I admit I really didn’t have any opinion on whether Facebook should or should not allow pictures like mine to be broadcast all over their site. I mean, it is their site and who are FB’s real customers? The advertisers, right? Do you think they want mastectomy photos gathering shares & likes? I don’t see why they would. What IS weird though is why FB, is so nervous about breasts. OK, it isn’t weird, they are just using the same criteria that all other US media use but what on earth is wrong with breastfeeding? In my opinion, breastfeeding should be more visible, I mean, it is normal, it’s natural! Wouldn’t we all be better, calmer and happier seeing more of that? I know I would. Well anyway, now that Facebook has clarified their policy, about half the sites that are reporting on it are using, yup… my photo. Here is a sample: inquisitr posts new facebook policy
Since Angelina Jolie’s news, I’ve seen several points repeated, so I’ll address them:
“She should have waited until she actually had cancer.”
This actually reflects several misunderstandings: of Cancer itself, a confusion between systemic and localized cancer, and a lack of knowledge about mastectomy procedures. She couldn’t have had the surgery she had if she had waited until she had cancer. What she had is a “skin-sparing prophylactic mastectomy” the point of which is to remove as much breast tissue as possible while giving a result that is not obtainable with reconstruction after cancer surgery. Compare the pix below:
Pretty big difference isn’t there? The first looks natural and the second is designed to look natural in clothing. The scars from biopsies and mastectomy really can’t be hidden that easily.
The other problem with actually waiting and relying on so-called early detection is that it assumes that a mastectomy could or should be done at that point when it is not always the best option. Cancers may be local or systemic and just because a cancer is small does not necessarily mean that it was caught early or that it will be easy to treat. A small cancer could be a very aggressive cancer with tendrils reaching into other organs that would need to be treated with radiation, chemotherapy or other treatments and skin that has been scarred and irradiated is not always capable of being stretched over an implant. Essentially, once you have a malignant tumor, you are no longer having a “prophylactic mastectomy” because breast cancer may be in other parts of your body besides your breasts as author Kelli and her sister, Fran, discover in this article, MY SISTER HAD A DOUBLE MASTECTOMY TOO, BUT SHE DIED OF BREAST CANCER ANYWAY.
This is similar to what happened to my mother. For those of you who haven’t read it before, Mom had breast cancer which was treated by lumpectomy and radiation. She had the requisite followups of mammograms and biopsies and when she was diagnosed with metastasized breast cancer in her lungs, liver and spine twenty years later, her breasts were clear of cancer. So if she had a so-called “prophylactic mastectomy” at the first sign of cancer, she would have had the same thing happen.
Here is another absurd yet oft’ repeated statement…
“No ethical doctor would ever remove a perfectly healthy set of testicles from a man who has no symptoms of testicular cancer, so how could a doctor do this?”
Here we have both medical ethics and sexism rolled into one question. The quote brings to mind all the tabloid scandals since the 60s from medically unnecessary hysterectomies, (the so-called Harlem appendectomy) to DES, from C-sections to prophylactic mastectomies… never mind that this time it is the women asking for the procedure. There are a couple of things that really irk me about this statement.
1. Testicles aren’t analogous to breasts, but to ovaries, and as important as these are women do get them removed much more cavalierly than they remove breasts. Breasts actually have little function aside from breastfeeding infants and Jolie and most other women who are in the age group to be considering this procedure have probably already done that.
2. Since cancers affect lungs, pancreases, stomachs, and plenty of organs that can’t be removed preemptively, does that mean that something that can be, shouldn’t be? These women are educated, can generally afford the procedures if not covered by insurance and are making their decisions with their doctors. Is that really different than any other elective procedure?
When Tina and I designed my mastectomy coverup tattoo, I considered it a personal thing that would be seen by me, Tina, Scott, my surgeon and probably a few women that I would show it to now and then. But when Tina was approached by MSNBC’s Michelle Smawley to be featured in the segment of MSNBC Investigates: Tattooed Women, she said she just knew it had to be about our project.
I am a shy person so it took me a long time to cozy up to the idea but my mother and step-mother’s experiences with breast cancer surgery and especially the feedback from women who had seen my tattoo pushed me to tell the story.
Michelle came out from New York City with her crew and interviewed Tina, my husband and me for hours and once the filming was done, life went back to normal….for about two weeks and then the anxiety started. Would she make us look like ninnies? Had any of us said anything particularly stupid? What were we thinking when we agreed to this? Finally, I couldn’t stand it anymore. I called her in New York and told her that she couldn’t go ahead. I was a nervous wreck and losing weight — the works! She laughed and said she had just gotten off the phone after having the same conversation with Tina.
She reassured me that she had made us a beautiful segment and that every morning the whole production crew crowded into her cubicle to watch it and all left with tears in their eyes. The only consideration they were having to consider was whether my topless images counted as nudity or not and Legal was reviewing that. She sent us a VHS tape of the show when it aired and we were all relieved, if not pleased. She will be my pick if I ever need a producer for a show. Afterwards, we would get calls from family members periodically, “You guys were on TV again” or Scott or I would get recognized at work or in restaurants occasionally. Tina and I were once at a Vince’s restaurant together and we ended up with a boothful of waitresses tearfully telling us how much the show had meant to them — it was wonderful.
But none of that compares to the buzz lately. We were at lunch with friends last week and one of them mentioned getting the pictures sent to him by a friend. Another friend from my knitting group got pics emailed to her from a friend in Australia and the tattoos were also featured on the Bob Rivers’ Show Facebook page with 10,870 likes, 7,923 shares and 1,028 comments, most of which weren’t from weirdos. I am not sure why the buzz goes in waves like this but if it helps more women to feel better about their bodies, then I will try to keep my blushes to myself.
I got a surprise recently when I spotted pictures of my tattoo on pinterest. Scott posted pictures of it on his blog years ago and apparently the tattoo has taken on a life of its own. It has been pinned nearly 500 times and is linked on as many websites. Since that many people are being exposed to it, I guess it is time that I moved the pictures to my own blog and wrote its story myself. I’ll keep this post short but I’ll move it to a “breast cancer” tab and keep adding to it as I go.
I have had so many positive comments from women about how much my art has helped them to come to terms with their bodies and their scars that I want this to be a more permanent resource that people can refer their friends to and revisit as they wish. I promise to get some professional pictures done along the way as well.